Ok, so this blog has been gathering dust for a while now, but I need to rant, and it will not be PG rated like my other blogs.
So, backstory. My second daughter is now 14. When she was 1 we found out she had a genetic kidney disease that required 4 months in the hospital, both of her kidneys removed and then 2 years of dialysis and finally a kidney transplant to “fix”. That transplant was her birthday present when she was 3. Well that transplant has now lasted 11 years and is finally failing. She is now on the transplant list again. That is a whole other world of headaches.
Now the rant portion. Apparently Primary Children’s hospital here in Salt Lake City, Utah is one step down from God’s own throne. I keep returning to calling it the glass castle on the hill, and boy do they act like they should be deified. Not everyone up there, but the team we are working with now, hold deep fried crap I want to punch some of them. One good thing about the COVID beast’s rampage: It is keeping me from homicide.
Ever since they (and by they I mean the kidney doctors and nurses or “team” from now on) got a ton of new kidney patients, they had to reallocate the care managers for each kid. We went from a completely competent ex ICU nurse to a sniveling little toad of a man who doesn’t even deserve the title of RN. My wife, an ex ER nurse, could out nurse him any day of the week from a wheelchair, blindfolded. He may know what he is doing, but I am not convinced. The worm does not get to try and pass off his insecurities and lack of proper manhood, not to mention his sticking his foot in his mouth, on my wife, saying that she is not capable of relaying his messages. People would die if she couldn’t relay messages in the ER, and do 4 other things at once. Yes there has been more than once where we have almost made him cry, overloading his tiny brain with big words and information. Now she will not talk to him without me being on the phone too, because she doesn’t want to kill him either. I still want to kill him, but I will hold off for a while, at least until I won’t be the first suspect.
Now, this is not a kid. He is at least 40, and may not make it much past that if he keeps at me. He doesn’t get to tell me how to care for my daughter and what she needs without consulting either me, my wife (who I have already said is in the thousands of percentage points better at being a nurse than he is) or even, wait for it, the patient herself. At 14, my daughter is more than capable, and expected to be part of the care of her own body. I don’t need some wormy little son of a bitch half assed nurse telling me about her care. If a doctor tells us something, well that is where diagnoses are supposed to come from.
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That rant was written about 6 months ago now. I no longer want to kill the sniveling son of a bitch but i wouldn’t mind beating the living hell out of him most of the time.
Now I am still annoyed with the inefficiency of the clinic and the fact that they have no respect for the time of anyone but themselves. I am also annoyed at the University of Utah’s transplant program and how freaking slow they are to get me worked up to donate a kidney for my daughter. That is another rant, that I will get working on for this site.
-Justin